On the upside

Good night last night. We got Jack laying on his side and I crawled into bed with him. What a difference it makes to have mommy by your side all night. Instead of waking up screaming, it was a calm, "mommy, I need something." It felt so good to hold him all night, I swear I was trying to heal his little body with love.

The pain is well-managed now. This is not to say there is no pain....he gets severe cramps and sharp pains in the pin sites where the skin is stretching. HOwever, he is comfortable most of the time and we are able to settle him down with breathing and distracting.

The epidural is coming out today! I can't wait to lose the tape on his back. It sounds silly, but that tape is one of the worst things right now. It is driving him crazy....it hurts when it pulls his skin, it's hot, and sticky. Once the epidural is out, we can take out the catheter and I think he'll feel so much better.

That's the plan for today. We saw his surgeon today and she said everything that is happening is 100% normal....that's what we want to hear. She wants him to take a shower today, which will be interesting...but he'll feel so much better afterwards. And, we're scheduled to do PT in the therapy room so we get to get out of bed and out of this room!!!

Today, we are feeling good. It feels like things are getting better slowly and that's all we're hoping for!